New podcast from CRL describes Factor-H

New podcast from CRL describes Factor-H

A few weeks ago, the scientific organization Charles River Laboratories (CRL) did a series on ‘inspiring scientists’ that showcase their work. Our President, Ignacio Muñoz (nacho) was featured in a documentary and a podcast. The podcast is now out. In it, Nacho is interviewed about his scientific work and the…
Basic assistance program

Basic assistance program

Delivering basic assistance such as food, soap, detergents, and disinfectants provides a life line for many families.
Medical Assistance Program

Medical Assistance Program

Improving access to healthcare has been at the core of Factor-H’s mission since its inception, knowing that health systems are usually under-prepared to optimally serve the rare diseases, and the situation in which HD families live in many regions of Latin-America makes the situation even more complex. The strategic planning…
Surveys of Affected Regions - tracking families as the first step to advocacy

Surveys of Affected Regions - tracking families as the first step to advocacy

In spite of the fact that the regions flanking Lake Maracaibo in Venezuela, the Caribbean Coast of Colombia and the province of Cañete, in Perú, have the highest incidence of HD in the world does not mean we know how many people are affected or at risk. The work conducted…
Legal assistance program

Legal assistance program

The legal assistance program has been operating informally in Colombia and Venezuela for a few years. Recently, Factor-H decided to establish a more structured effort to reach more families and have more of an impact. In Colombia, Factor-H works with volunteer lawyer Carlos Enrique Diaz, who has been assisting families…
Special Assistance Program​

Special Assistance Program​

Why we need a special assistance program and why we need to expand it We know many of the families we represent experience dire circumstances. We cannot help everyone all the time. Aside from our basic assistance program, we established a Special Assistance program to address particularly difficult situations. Only…
Little Schools Program ​(Escuelita) in Barranquitas, Venezuela

Little Schools Program ​(Escuelita) in Barranquitas, Venezuela

The current objective of this educational intervention is to standardize the learning of children at risk of HD not enrolled in school so that they can be inserted or reinserted into the official formal educational structure. We began this program in 2020 and following a short discontinuation due to the…
Educational Strategies for youth​

Educational Strategies for youth​

Education takes many forms. We approach the issue of educating our friends, depending on their ages, from various angles. We work with educators and psychologists to help them cope with the specter of the disease and the very difficult situations they experience at home, and because of the fact that…
Programa Nuevos Horizontes​ (New Horizons). Re-structure of the Abrazos Program

Programa Nuevos Horizontes​ (New Horizons). Re-structure of the Abrazos Program

Objective of the re-structuring To implement a restructuring of the existing Abrazos Program to provide equity, physical and mental health to all children and adolescents of families affected by Huntington’s Disease (HD) in Colombia and Venezuela. extends prior Abrazos Program to cover all children living in HD families, regardless of…
The Latin American Professional Exchange Program

The Latin American Professional Exchange Program

The LA PEP program’s main objective is to provide educational opportunities to health professionals in Latin American enclaves with a high incidence of Huntington’s disease. Two main dimensions Send Latin American professionals to be trained to HD centers of excellence in Barcelona (Spain), Medellin (Colombia) and Santiago (Chile). Send a multidisciplinary team from…