New donations reaching families in El Dificl and San Angel, Colombia, via Funcovulc
Our work keeps progressing, albeit slowly, to assist impoverished families in Colombia and Venezuela. With the help of several small donations from pharmaceutical and biotech companies working in the field of HD, we were able to gather some resources to finalize our aid programs in 2016. Thank you to those organizations who have helped Factor-H. […]
Final delivery of donations for AcolpEH in 2016
Janeth Mosquera and her team at AcolpEH work tirelessly for the benefit of the families living wiht HD in Bogota, Medellin and Choco, among other regions of Colombia.Factor-H has been working with AcolpEH for over 3 years now. One of the programs we started a couple of years ago was a donations program, which this […]
New article about Colombia and Factor-H in the Lancet Neurology
Dara Mohammadi just wrote a final piece from the trip we took together to Colombia in April 2016. You can find the pdf of the article here: HD Colombia Lancet Also read about Enroll-HD efforts here: http://www.enroll-hd.org/ Please note that even though efforts to initiate Enroll-HD are underway in Colombia, the project has been running […]
Start of ‘Proyecto Abrazos’ – The Children’s Project
Sábanas de San Angel – this past April. We pulled in with Fermín’s car loaded with food, hammocks, and clothes. The scenery was arid – this region has suffered from a profound drought for a while now, and everything is dried up. The Cañahuate trees the only bright color amidst fields of dust and ochres. […]
Colombia April 2016 – Part 3: Stories from Juan de Acosta
After our excursion into San Angel and Santa Marta, we drove to Barranquilla, where I gave a lecture at the local University, to some graduate students in psychology. For the first time since I started to visit Huntington’s communities, I was getting a sense that more young professionals and students were interested in learning, both […]
Colombia Trip April 2016 – Part 2
When we finally got our flight to Bogota from Quibdo, it was late at night. the plane was delayed and we did not take off until after 9pm. we landed around 11pm and we had to be back at the airport at 8am for the flight to Santa Marta. At the beginning of the trip, […]
New campaign to sponsor kids growing up in needy HD families in Colombia
Today we started a new campaign to help children living with HD in Colombia. see attached link please and spread the word! to Donate, please click here for Project Abrazos for HD also see an explanation of the program. Thank you and I hope that together we can help these children grow up with a […]
Choco, Colombia, April 11-12. PART 1 of our Colombian Visit
Our first leg of the trip to see HD families took us to a place I had never been before. Choco is an area of Colombia bordering Panama on the North and the Amazonian region in the South. Choco has borders with both the Pacific and the Atlantic oceans, and is one of the […]
Primer Simposio de Enfermedad de Parkinson, Huntington y Enfermedades Huérfanas
Its almost time to visit Colombia! Here is the link to the meeting we will be participating it at the end of the 2 week trip to visit the Colombian Communities. I hope we will have a positive impact for the patients, their families, the physicians and the regulatory authorities. The beginning of Enroll-HD […]
Nature publication speaking out for the benefit of HD communities in Latin America
I was able to get an opinion piece in the prestigious scientific journal Nature. I hope this piece might be the beginning of a renewed conversation about how to help these communities. Here is the link: Nature article Enjoy nacho
