Program “Abrazos” is an ongoing program in Colombia since 2015 (currently 40 children), and also in Venezuela since 2019 (120 children). This program covers basic assistance – food, clothes, school supplies, medical access. Additionally, program covers recreational and educational events every 6 months (Christmas and summer holidays events and trips)
Late-stage nursing home care Program Program is focused on providing home visits for late-stage, bedridden patients, via a nursing team trained in HD care.
Emergency program for families located in difficult to access locations. Includes telemedicine consultations with HDspecialists as well as provision for emergency transport to hospital centers if needed
Regular medical assistance program to ensure affiliated families get access to medications and visits by HDspecialists at a local clinic or at home
Phone app being developed to provide educational AV material for caregivers. Program includes initial visit to homesto ascertain level of need for caregivers.