It was with the pomp and intrigue of a Dan Brown novel that earlier this month Pope Francis made his way into the Aula Paolo VI audience hall, a room the size of an aeroplane hangar in Vatican City. Flanked by the flamboyant Swiss Guard and dark-suited men muttering into…

Objectives of the Clinical Practice Guidelines for the Management of Huntington’s Disease in Latin America In 2020, Factor-h obtained a grant from Roche for a project to generate an evidence-based clinical consensus for Latin America countries. The general objective of this consensus is to approach the health problems and improve the…

El Papa consoló a cientos de enfermos del mal de Huntington, una enfermedad genética mortal difundida sobre todo en la América Latina, animándolos a “no sentirse una carga” y lamentando el “aislamiento y abandono” que sufren. Entre ellos se encontraba Brenda, una adolescente argentina de 15 años y el cantante…

Huntington’s disease (HD) is a genetic, fatal, and progressive neurodegenerative disease. HD does not discriminate based on ethnicity or gender. It advances slowly, but relentlessly. The disease is caused by mutations in a single gene, called Huntingtin, and the penetrance of the mutation is 100%.  If one is born with a Huntingtin mutation, today…

Program “Abrazos” is an ongoing program in Colombia since 2015 (40 children as of 2020), and also in Venezuela since 2019 (120 children as of 2020). This program covers basic assistance – food, clothes, school supplies, dental and medical access. Additionally, program covers recreational and educational events every 6 months…

El presidente de Factor-H expone su primera reacción y hace un primer análisis tras la noticia de la suspensión de los estudios de Fase III de Roche con Tominerse, y expone un resumen de los programas que siguen activos. Estimados amigas y amigos, esta semana ha sido una de las…

With over 20,000 views, Dancing at the Vatican documentary has been a success, and we hope this film has inspired people. We remember with fondness the trip to the Vatican and remain thankful for the words and warmth Pope Francis delivered to the HD community. The documentary is subtitled in…

A BOOK OF SHORT STORIES BY TATIANA HINOJOSA FROM VALLEDUPAR Tatiana Hinojosa is a well-known writer and teacher from Valledupar, Colombia. Tatiana went to grammar school with Leyla Mieles, an associate of Factor-H in Colombia, who introduced our mission to Tatiana, who quickly became aware of the need to increase…

2020 was a year like no other. The global Covid-19 pandemic impacted the entire world, but it has taken a heavy toll on poor communities around the world. Most of the families we assist live in vulnerable conditions, and their access to employment and medical assistance were significantly impacted.  We reacted…

It is now 9:52pm in Los Angeles and it is officially my birthday in Spain. I was born at 8am on the 8th January of 1972 – 49 years ago today. As I write this, life is the USA is very complicated – we have had an attack on democratic…