The Dancing at The Vatican Documentary
With over 20,000 views, Dancing at the Vatican documentary has been a success, and we hope this film has inspired people. We remember with fondness the trip to the Vatican and remain thankful for the words and warmth Pope Francis delivered to the HD community. The documentary is subtitled in several languages including Spanish and […]
A reflection based on a poem by Clint Smith
I Just listened to a TED radio podcast with poet and author Clint Smith, reflecting upon the current circumstances which evidence systemic oppression and violence against black Americans. We have all felt horror, frustration and fear in waves during the last few days. It is impossible for most of us, who did not grow up […]
Meeting with Pope Francis at the Vatican May 18, 2017
Factor-H is pleased to announce a private audience with Pope Francis at the Vatican on May 18, 2017 (11am) to honor Latin American families affected by HD
Donations are delivered to the suffering communities in Maracaibo – thanks to the Barcelona patients’ association UEFH
As the country of Venezuela spins out of control and people run out of food and medication, the most significant communities affected by Huntington’s disease in Maracaibo are starving. According to our friend and collaborator Dr. Ernesto Solis, a resident of Maracaibo and a tireless advocate of the families affected by HD there, people often […]
New donations reaching families in El Dificl and San Angel, Colombia, via Funcovulc
Our work keeps progressing, albeit slowly, to assist impoverished families in Colombia and Venezuela. With the help of several small donations from pharmaceutical and biotech companies working in the field of HD, we were able to gather some resources to finalize our aid programs in 2016. Thank you to those organizations who have helped Factor-H. […]
Final delivery of donations for AcolpEH in 2016
Janeth Mosquera and her team at AcolpEH work tirelessly for the benefit of the families living wiht HD in Bogota, Medellin and Choco, among other regions of Colombia.Factor-H has been working with AcolpEH for over 3 years now. One of the programs we started a couple of years ago was a donations program, which this […]
New article about Colombia and Factor-H in the Lancet Neurology
Dara Mohammadi just wrote a final piece from the trip we took together to Colombia in April 2016. You can find the pdf of the article here: HD Colombia Lancet Also read about Enroll-HD efforts here: http://www.enroll-hd.org/ Please note that even though efforts to initiate Enroll-HD are underway in Colombia, the project has been running […]
Article by Monica Roa – a lawyer working with Factor-H to protect the rights of the patients in Colombia
A couple of months ago, I met Monica Roa in Washington DC to discus whether we could team up to deal with the issues facing many of the Colombian families – the lack of institutional and government support, the refusal by many of the insurance companies (called EPS in Colombia) to provide them with palliative […]
Start of ‘Proyecto Abrazos’ – The Children’s Project
Sábanas de San Angel – this past April. We pulled in with Fermín’s car loaded with food, hammocks, and clothes. The scenery was arid – this region has suffered from a profound drought for a while now, and everything is dried up. The Cañahuate trees the only bright color amidst fields of dust and ochres. […]
Colombia April 2016 – Part 3: Stories from Juan de Acosta
After our excursion into San Angel and Santa Marta, we drove to Barranquilla, where I gave a lecture at the local University, to some graduate students in psychology. For the first time since I started to visit Huntington’s communities, I was getting a sense that more young professionals and students were interested in learning, both […]
