The Dancing at The Vatican Documentary

Dancing at the Vatican

With over 20,000 views, Dancing at the Vatican documentary has been a success, and we hope this film has inspired people. We remember with fondness the trip to the Vatican and remain thankful for the words and warmth Pope Francis delivered to the HD community. The documentary is subtitled in several languages including Spanish and […]

A reflection based on a poem by Clint Smith

I Just listened to a TED radio podcast with poet and author Clint Smith, reflecting upon the current circumstances which evidence systemic oppression and violence against black Americans. We have all felt horror, frustration and fear in waves during the last few days. It is impossible for most of us, who did not grow up […]

New donations reaching families in El Dificl and San Angel, Colombia, via Funcovulc

Our work keeps progressing, albeit slowly, to assist impoverished families in Colombia and Venezuela. With the help of several small donations from pharmaceutical and biotech companies working in the field of HD, we were able to gather some resources to finalize our aid programs in 2016. Thank you to those organizations who have helped Factor-H. […]

Final delivery of donations for AcolpEH in 2016

Janeth Mosquera and her team at AcolpEH work tirelessly for the benefit of the families living wiht HD in Bogota, Medellin and Choco, among other regions of Colombia.Factor-H has been working with AcolpEH for over 3 years now. One of the programs we started a couple of years ago was a donations program, which this […]

New article about Colombia and Factor-H in the Lancet Neurology

Dara Mohammadi just wrote a final piece from the trip we took together to Colombia in April 2016. You can find the pdf of the article here: HD Colombia Lancet Also read about Enroll-HD efforts here: http://www.enroll-hd.org/ Please note that even though efforts to initiate Enroll-HD are underway in Colombia, the project has been running […]

Start of ‘Proyecto Abrazos’ – The Children’s Project

Sábanas de San Angel – this past April. We pulled in with Fermín’s car loaded with food, hammocks, and clothes. The scenery was arid – this region has suffered from a profound drought for a while now, and everything is dried up. The Cañahuate trees the only bright color amidst fields of dust and ochres. […]

Colombia April 2016 – Part 3: Stories from Juan de Acosta

After our excursion into San Angel and Santa Marta, we drove to Barranquilla, where I gave a lecture at the local University, to some graduate students in psychology. For the first time since I started to visit Huntington’s communities, I was getting a sense that more young professionals and students were interested in learning, both […]