Late-stage nursing home care Program Program is focused on providing home visits for late-stage, bedridden patients, via a nursing team trained in HD care.
Emergency program for families located in difficult to access locations. Includes telemedicine consultations with HDspecialists as well as provision for emergency transport to hospital centers if needed
Regular medical assistance program to ensure affiliated families get access to medications and visits by HDspecialists at a local clinic or at home
Phone app being developed to provide educational AV material for caregivers. Program includes initial visit to homesto ascertain level of need for caregivers.
With over 20,000 views, Dancing at the Vatican documentary has been a success, and we hope this film has inspired people. We remember with fondness the trip to the Vatican and remain thankful for the words and warmth Pope Francis delivered to the HD community. The documentary is subtitled in several languages including Spanish and […]