(On the limits of human suffering)

the disease

Huntington’s Disease is a genetic, progressive and fatal neurodegenerative disease. It does not discriminate based on ethnicity or gender. It advances slowly, but relentlessly… (more)

Involutary movements...
Early signs and symptoms can include irritability, depression, lack of motivation, involuntary movements, poor coordination, lack of focus, and trouble learning new information or making decisions.
As the disease progress...
Affected individuals will have trouble walking, speaking, and swallowing, they will experience changes in personality and a decline in their thinking and reasoning abilities.
Fatal outcome
Individuals with the adult-onset form of Huntington disease usually live about 15 to 20 years after signs and symptoms begin. Individual become completely dependent for care. People experience an inability to stand, speak or eat by themselves, and lose body weight. A fatal outcome will inevitably arrive if she or he lives long enough.
The Gene
Latin America holds a special place in the scientific history of HD. In 1993 an international effort first identified the mutations causing Huntington’s disease in the large number of related, affected people living in the Maracaibo region of Venezuela.
Because of the discovery of the gene that causes HD, today we have advanced several therapeutic programs to clinical trials targeting the mutant gene. Factor-H founders are scientists and clinicians leading these efforts, and hope to bring new therapies to affected communities everywhere”

Here are some numbers

Latam rest